Foundations/Support Groups
https://www.magicfoundation.org/
The MAGIC Foundation is a nonprofit, national organization created to provide support and educational services for the families of children who have a wide variety of chronic and/or clinical disorders, syndromes and diseases that affect growth.
The Human Growth Foundation (HGF) is a national, nonprofit organization dedicated to helping individuals with growth-related disorders and their families. It provides education and support for the family as well as education for healthcare professionals. HGF also acts as an advocate for those with growth problems.